Myasthenia Gravis Foundation of America Global MG Patient Registry
Public ClinicalTrials.gov record NCT06617741. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Brief summary
Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.
The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.
Study identification
- NCT ID
- NCT06617741
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Enrollment
- 3,800 participants
Conditions and interventions
Conditions
- Myasthaenia Gravis
- Myasthenia
- Myasthenia Gravis Associated with Thymoma
- Myasthenia Gravis Crisis
- Myasthenia Gravis Exacerbations
- Myasthenia Gravis Generalised
- Myasthenia Gravis with Exacerbation (Disorder)
- Myasthenia Gravis, Adult Form
- Myasthenia Gravis, Generalized
- Myasthenia Gravis, Ocular
- Myasthenia Gravis, Thymectomy
- Myasthenia Gravis
- Myasthenia Gravis, MuSK
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 18 Years and older
- Sex
- All
- Healthy volunteers
- Healthy volunteers not accepted
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Oct 11, 2013
- Primary completion
- Sep 18, 2029
- Completion
- Sep 18, 2029
- Last update posted
- Sep 26, 2024
2013 – 2029
United States locations
- U.S. sites
- 1
- U.S. states
- 1
- U.S. cities
- 1
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Myasthenia Gravis Foundation of America | Westborough | Massachusetts | 01581 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT06617741, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Sep 26, 2024 · Synced Sep 7, 2026
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Open the official record
The complete protocol, eligibility criteria, and contact information for NCT06617741 live on ClinicalTrials.gov.