Decision-Making and Quality of Life Surrounding Hematologic Disease and Gene Therapy

ClinicalTrials.gov ID: NCT06664541

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ClinicalTrials.gov public records Last synced Nov 13, 2026, 12:47 AM EST

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Brief summary

Reproduced verbatim from the official ClinicalTrials.gov record. Not medical advice.

Determine knowledge, attitudes, and beliefs among adult patients, and parents of pediatric patients, with transfusion dependent beta-thalassemia and sickle cell disease toward gene therapy to treat their or their child's illness, and to assess the likely impact of gene therapy on patients' quality of life.

Study identification

NCT ID: NCT06664541
Recruitment status: Enrolling by invitation
Study type: Observational
Phase: Not listed
Lead sponsor: Georgetown University; Other
Enrollment: 100 participants

Conditions and interventions

Conditions

Interventions

Not listed

Eligibility (public fields only)

Age range: 18 Years and older
Sex: All
Healthy volunteers: Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Oct 1, 2024 (Actual)
Primary completion: Oct 1, 2026 (Estimated)
Completion: Dec 1, 2026 (Estimated)
Last update posted: Oct 29, 2024

2024 – 2026

United States locations

U.S. sites: 1
U.S. states: 1
U.S. cities: 1

Facility	City	State	ZIP	Site status
Georgetown University Medical Center	Washington D.C.	District of Columbia	20007	—

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT06664541, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted Oct 29, 2024 · Synced Nov 13, 2026