ALS/MND Natural History Study Data Repository

ClinicalTrials.gov ID: NCT05966038

Public ClinicalTrials.gov record NCT05966038. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.

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ClinicalTrials.gov public records Last synced May 20, 2026, 11:51 PM EDT

Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.

Study identification

NCT ID: NCT05966038
Recruitment status: Recruiting
Study type: Observational
Phase: Not listed
Lead sponsor: Massachusetts General Hospital; Other
Enrollment: 5,000 participants

Conditions and interventions

Conditions

Interventions

Not listed

Eligibility (public fields only)

Age range: 18 Years to 90 Years
Sex: All
Healthy volunteers: Healthy volunteers not accepted

This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.

Study timeline

Start date: Mar 31, 2015
Primary completion: Dec 30, 2030
Completion: Dec 30, 2030
Last update posted: May 19, 2026

2015 – 2030

United States locations

U.S. sites: 14
U.S. states: 10
U.S. cities: 13

Facility	City	State	ZIP	Site status
Loma Linda University Health	Loma Linda	California	92354	Recruiting
Kaiser Permanente	Los Angeles	California	90027	Recruiting
University of Florida	Gainesville	Florida	32610	Recruiting
Northwestern University	Chicago	Illinois	60611	Recruiting
Lahey Clinic	Burlington	Massachusetts	01805	Recruiting
Henry Ford Health System	Detroit	Michigan	48202	Recruiting
Trinity Health Michigan	Grand Rapids	Michigan	49503	Recruiting
University of Minnesota	Minneapolis	Minnesota	55455	Recruiting
Saint Louis University	St Louis	Missouri	63104	Recruiting
Providence ALS Clinic	Portland	Oregon	97213	Recruiting
Thomas Jefferson University	Philadelphia	Pennsylvania	19107	Recruiting
Temple University Lewis Katz School of Medicine	Philadelphia	Pennsylvania	19140	Recruiting
University of Pittsburgh	Pittsburgh	Pennsylvania	15360	Recruiting
Virginia Commonwealth University	Richmond	Virginia	22908	Recruiting

Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.

Non-U.S. locations

This page focuses on the U.S. directory. The official record also lists 4 non-U.S. sites.

About this trial record page

What this page shows: Public field values for ClinicalTrials.gov record NCT05966038, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
What this page does not do: No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
Where the data comes from: Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
Last refresh: Last update posted May 19, 2026 · Synced May 20, 2026

Open the official record

The complete protocol, eligibility criteria, and contact information for NCT05966038 live on ClinicalTrials.gov.

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