ALS/MND Natural History Study Data Repository
Public ClinicalTrials.gov record NCT05966038. Field values are reproduced from the official study page; the official ClinicalTrials.gov record remains the source of truth for eligibility, enrollment, and contact information.
Data is sourced from official ClinicalTrials.gov public API records. Always review the official ClinicalTrials.gov record for the latest information.
Study identification
- NCT ID
- NCT05966038
- Recruitment status
- Recruiting
- Study type
- Observational
- Phase
- Not listed
- Lead sponsor
- Massachusetts General Hospital
- Other
- Enrollment
- 5,000 participants
Conditions and interventions
Conditions
Interventions
Not listed
Eligibility (public fields only)
- Age range
- 18 Years to 90 Years
- Sex
- All
- Healthy volunteers
- Not listed
This page does not interpret eligibility. Detailed inclusion and exclusion criteria are on the official ClinicalTrials.gov record.
Study timeline
- Start date
- Mar 31, 2015
- Primary completion
- Dec 30, 2030
- Completion
- Dec 30, 2030
- Last update posted
- Nov 13, 2025
2015 – 2030
United States locations
- U.S. sites
- 12
- U.S. states
- 10
- U.S. cities
- 12
| Facility | City | State | ZIP | Site status |
|---|---|---|---|---|
| Loma Linda University Health | Loma Linda | California | 92354 | Recruiting |
| Kaiser Permanente | Los Angeles | California | 90027 | Recruiting |
| University of Florida | Gainesville | Florida | 32610 | Recruiting |
| Northwestern University | Chicago | Illinois | 60611 | Recruiting |
| Lahey Clinic | Burlington | Massachusetts | 01805 | Recruiting |
| Henry Ford Health System | Detroit | Michigan | 48202 | Recruiting |
| University of Minnesota | Minneapolis | Minnesota | 55455 | Recruiting |
| Saint Louis University | St Louis | Missouri | 63104 | Recruiting |
| Providence ALS Clinic | Portland | Oregon | 97213 | Recruiting |
| Temple University Lewis Katz School of Medicine | Philadelphia | Pennsylvania | 19140 | Recruiting |
| University of Pittsburgh | Pittsburgh | Pennsylvania | 15360 | Recruiting |
| Virginia Commonwealth University | Richmond | Virginia | 22908 | Recruiting |
Site contact phone numbers, emails, and investigator names are intentionally not displayed here. Open the official ClinicalTrials.gov record for site contact information.
Non-U.S. locations
This page focuses on the U.S. directory. The official record also lists 4 non-U.S. sites.
About this trial record page
- What this page shows
- Public field values for ClinicalTrials.gov record NCT05966038, including study identification, conditions, interventions, eligibility (age, sex, healthy volunteer), timeline, and U.S. site list.
- What this page does not do
- No medical advice, eligibility judgments, treatment recommendations, study quality scoring, or AI-generated medical summaries. No site contact phone numbers, emails, or investigator names.
- Where the data comes from
- Sourced from the official ClinicalTrials.gov public API. The official record is the source of truth.
- Last refresh
- Last update posted Nov 13, 2025 · Synced Apr 20, 2026
Related: full search, browse by condition, browse by drug or therapy, browse by sponsor, browse by U.S. city.
Open the official record
The complete protocol, eligibility criteria, and contact information for NCT05966038 live on ClinicalTrials.gov.